This June Cystic Fibrosis Week is drawing attention to the disease; to raise awareness and make improvements.
Every week five babies are born with cystic fibrosis as two young people die from it in the same week. So what is the condition exactly?
Cystic fibrosis is caused by a faulty gene carried by parents and affects the the lungs and digestive system making it harder to breathe and eat easily.
Around half of people living with the condition could expect to live over the age of 38 but developments in treatment for cystic fibrosis could lengthen their lives.
You could help out by fundraising in one of the many, many ways there are to do it! Go skydiving, abseiling, trekking ... or if that's a bit too ambitious organise your own event or find out what's going on near you!
Right now Cystic Fibrosis research is working on gene therapy to correct the gene and wipe out the disease altogether. But research costs money and you could contribute in a huge way for just one week.
I know a little girl with cystic fibrosis and although she loves to have fun like any other child her age the condition can really slow her down. Help her and others now by visiting the Cystic Fibrosis Week website for more information and event planning info.
FREE - If you would like an AWARENESS DAYS ALERT then fill in below, we will send it monthly.